Life with Lupus (as told by pictures off the internet)

I decided to write a Buzzfeed style article about having lupus. They are pretty great at creating funny but insightful posts about living with different illnesses, both physical and mental. They’ve covered chronic illnesses a lot, and it’s great being able to see people sharing the same pains also able to share the same humour. Still waiting for theirs specifically dedicated to lupus, so in the meantime here’s mine.

Because my favourite lesson from art in school was that art is all about stealing ideas. Not exactly 100% true, but useful when lacking in creativity.

Describing lupus like…

btpgjkjlqglqm

I actually stole this from this post, but it really made me laugh. Because yep, I sometimes find myself being too casual talking about my constant blood tests, list of medications, having a biopsy, dodgy organs and a couple of blood transfusions etc…

Actually having lupus like…

f1u1xxgaq1zjy

Slight exaggeration, but on bad days it feels like it.

Taking pills like…

vjvx6yjg3ado4

When I was first diagnosed I was on over 20 pills a day, now it’s about 11. At first I hated having to take so many a day, now it’s second nature.

Getting through a whole day like…

lsnqpyqgrqwrs

It’s little, but it’s still an achievement.

Walking into doctor appointments like…

tumblr_inline_odry5nx4mg1su1pqh_500

Remember me? Of course you do, it hasn’t been long. Please don’t dismiss anything I say as unimportant, chances are it’s bothering me. Please say it’s okay to reduce some medication dosages, that’s what I like to hear. And thank you for answering all my stupid questions without making me feel stupid, and know I have a hell of a lot of trust in you.

Doctors requesting blood tests like…

l2ywjytfzpw0uiwnq

Although I know it’s all important and necessary, sometimes it feels like they request extra blood vials just for the hell of it.

Avoiding the sun like…

p0l1rezlh2tja

If the medical staff aren’t vampires, being anaemic and/or ultra sensitive to sunlight makes you feel like you’re one instead.

Having a moon face like…

b78dd3126ad74956bc55a31acaef4d43

This has knocked my self esteem to an all time low, thanks prednisone – you save my life but you don’t make it easy.

Hair falling out like…

12l032yjnopyxy

Always having to casually brush away lots of strands of hair littering the place hoping people don’t notice…

But being grateful like…

3oeduzvkpwu8n1uf3o

I mean it’s not really, but it makes you appreciate life, what you can achieve, and being able to spend time with people more, whether it’s just hanging out or something bigger. It also helps you see just how caring your support group can be, and that you’d be a weeping mess without them ❤

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s